My Strange Afflictions, Part 3

Continued from Cause and Effect – My Strange Afflictions, Part 2

* I’m sorry I’ve strung these parts out. Had I left it all together it would’ve made for a very long story all in one sitting.

In the mean time, Dr. J, my primary, referred me to Gastroenterology at our university hospital because I’ve been on omeprazole for over 6 years and I’ve been having break-through GERD. I went to Dr. X on December 17th, 2012. Her physician’s assistant examined me first. He found a mass the size of a grapefruit (don’t they always seem to be that size?) in my abdomen below, above, and to the right of my belly button. Dr. X came in and the two of them poked and prodded my stomach. The pain was incredible, even shooting down my right leg. She ordered a CT with and without contrast and scheduled me for an endoscopy of my esophagus for the GERD problem.

Here we go again. Insurance wouldn’t pay for the testing at university hospital, but will at the other local major hospital. I have no idea why they approved me seeing Dr. X, but not any tests she would order. How stupid crazy is that? So, Dr. X’s office called Dr. J’s office to ask Dr. J to order the CT. Two whole weeks passed of me being worried to death, calling Dr. J’s office every other day and speaking with inept Office Worker D. She kept telling me she was waiting on my medical records from Dr. X’s office before she could put through the request to Dr. J. I finally hung up on her for the last time. I immediately called back and asked for Nurse A. I love that girl. She said Dr. J would never order a test for another doctor without seeing the patient. So Office Worker D had wasted two weeks for nothing.

I went to Dr. J on January 7, 2013, and he felt the mass in my abdomen. He ordered the CT and referred me to Dr. N, the GYN upstairs in the same medical complex. Dr. J thought it might be a fibroid tumor.

I apologized to OW D on my way out. I felt bad for hanging up on her. But I wanted to say, “What if it was your mother, sister, or daughter with a huge unidentified mass in their abdomen?” Of course I didn’t.

Now, things would’ve progressed much faster if OW D hadn’t still been p.o.ed at me even after I apologized.  She faxed the request for the CT to my insurance company on the 7th. I called two days later to ask when I was supposed to get an appointment with radiology. She said she hadn’t received a fax back from insurance. So, I called my insurance company. ~_~  They said they had faxed the approval back to her on the 8th. I called radiology and made my own appointment. They were fine with me just telling them insurance had approved.

I had the CT done, finally, about 4 weeks ago. Two weeks ago, Office Worker D called to say she’d finally received approval from the insurance company and was ready to make the appointment. HA! Imagine her surprise when I told her I’d had it done two weeks earlier. I said thanks and good-bye before she could ask how. I know it’s wrong, but I hope she worried I’d complain to Dr. J.  Of course, I didn’t.

Nothing out of the ordinary was seen on the CT. Meaning no mass was found. Only one 13mm cyst on my left ovary. I had my visit with Dr. N and she was alarmed and puzzled. She could feel the mass, but had no idea how it wasn’t seen on the CT. How on earth could four doctors and myself feel this thing and it not show up? I suggested she have another radiologist look at it. In the mean time, she ordered a trans-vaginal ultrasound. Two days later, Nurse J called and said Dr. N needed me to have a blood test. I waited until Friday, February 1st since I also needed a fasting blood test ordered by Dr. J to see if my cholesterol had come down with the introduction of Crestor to my Rx line-up.

I called on the following Monday for the results and Nurse J said the results weren’t back yet. She made a follow up appointment for Friday the 8th, but if the results were back sooner she’d call. They were, she did, and I saw Dr. N on the 6th. Apparently, I have a cyst on my right ovary that’s 15cm. FIFTEEN CM! That’s the size of a small melon. She said the blood test was to see if there were any cancer markers showing up. The test was negative. Praise God. But no matter what, the cyst has to come out. We’ve decided to do a complete hysterectomy at the same time, so my 16-year bout with horribly painful ovarian cysts will forever be a thing of the past.

The thing that is most puzzling to Dr. N and I is, how on earth could this cyst be the mass surrounding my belly button? Before I went to see her, I did some Internet research. I wanted to know if scar tissue would show up on a CT or MRI. I found a forum on which people were discussing the same thing, but no one had an answer. Some said that the scarring from having their gallbladder removed had caused all kinds of abdominal problems. One of the incisions made during the laparoscopic removal of mine was inside my belly button. Could I have scar tissue that has been forming for 16 years? What if scar tissue has adhered to some of my internal organs, such as my adrenal glands?

I’m scheduled for surgery March 13th, 2013. Dr. N plans to begin by going through my left side with a laparoscope to see exactly what’s in there. If it’s just the cyst, she’ll drain it and pull it through the small opening then do a vaginal hysterectomy. If it’s something else, she’ll call in whatever specialty surgeon is required. I have a feeling this next month will be the longest of my life. My other medical issues have taken a back seat to this. I’m praying whatever this is, the removal of it will be the long awaited answer to all of my woes.

BTW, I received a CT report from Dr. J’s office. The first page reflected the conversation I had with his nurse, that there was only one 13mm cyst on left ovary. Attached were two pages of corrections. Apparently there was a 13CM cyst seen on right ovary on the CT. That thing had grown 2 whole centimeters between the time I had the CT and the ultrasound. How big will it be a month from now? Scary thought.

To be continued when I have any new information. Thank you for reading through, and for caring!

Love & Hugs,

Lis

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9 thoughts on “My Strange Afflictions, Part 3

  1. Well, well….we are of similar paths. Melissa, my fibroid was on my left ovary, that was why I had my hysterectomy. During surgery they found a golf ball size cyst. You will get through all this, and I will keep you in my prayers and reassure you, while though this may bring about anxiety you will persevere. This most likely has been causing the emotional distress…I am certain it was mine. God bless you.

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    • How bizarre is that? I wonder if it has something to do with the environment where we grew up? Stranger things have happened. Someone should take a survey of the residents of M’town and see how many have been afflicted with ovarian cysts and tumors. Food for thought, anyway. Thank you so much for being here for me, San! Love you, chica!

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      • Hmmm. I have had issues with ovarian cysts but not severe. I had one laparoscopy done to drain one but that was all. Still, even as small as mine were, they do affect you in bizarre ways-what with the hormonal issues associated with them. Speaking of this area, I can think of 3 of our classmates right off the top of my head who had fertility issues. It does make you wonder……………….

        I am putting the 13th on my calendar and will be praying you through this!!!!!

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        • You, too?! Oh my gosh. Well you know, M’town is surrounded by crops, no doubt treated by any number of dangerous pesticides/herbicides over the last century. All of that leaching into the ground water… I’ve always thought it odd that Grandma Betty got Parkinson’s disease and so did her next door neighbor. I thought that a very odd coincidence. However, she said her grandfather had had it, too, so that makes me think it might be genetic. *shrug*

          Thank you for being with me “virtually” on surgery day! I’m sure I’ll feel your spirit holding my hand. 🙂

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  2. Pingback: Cause and Effect – My Strange Afflictions, Part 2 |

  3. Yes, very interesting. I find all hysterectomies viable of research as the number grows. My mothered birthed five children and back in my childhood years, hysterectomies were rare, or shall I say rarely heard of. Now they are as epidemic as anxiety, panic attacks and dementia…food for thought. At the same time, I am grateful for my surgery, as the biopsy of my uterous came back with abnormal cells…..so that was eliminated.

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    • I know! Think about the number of women who suffered in silence throughout the ages because there wasn’t a doctor around to take care of them, or one who knew what to do. Thank heavens for modern medicine. It’s not perfect, but it’s better than being operated on by the barber. O_o

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